Lucy Edwards, now 27 years old, faced a profound challenge when she began losing her sight at the tender age of 11. This unexpected journey was caused by incontenita pigmenti, a rare genetic skin condition. The ordeal started with a gradual decline in vision in her right eye, and by the age of 17, she had lost her sight completely.
Love in the Midst of Darkness
Despite the daunting circumstances, Lucy’s path crossed with Ollie Cave in 2015, just before she lost her sight entirely. Their love story blossomed, and in June 2018, the couple decided to take their commitment to the next level by getting engaged.
A Wedding Date and a Unique Vision
Lucy and Ollie set the date for their wedding on August 31, 2023. However, Lucy had a unique vision for her big day.
She wanted to ensure that her friends and family could understand the profound emotions she had experienced during her 10-year journey of sight loss.
Sharing the “Bittersweetness”
Lucy believed it was crucial for her loved ones to share in the “bittersweetness” she had felt throughout her journey.
She wanted them to experience her world, and this meant not seeing her walk down the aisle.
A Sensory Wedding Experience
To create a sensory wedding experience, Lucy and Ollie chose to celebrate their special day at Kew Gardens, hiring three conservatories for the occasion at a cost of £12,000. Lucy carefully planned each detail to engage her guests’ senses fully
Walking Down the Aisle in the Dark
As Lucy made her way down the aisle to the moving sounds of “Arrival of the Birds” from the ‘Theory of Everything’ film score, her guests were blindfolded.
The sensory experience overwhelmed everyone, from the scent of flowers to the crescendo of instruments.
A Poignant Moment of Unity
Lucy’s unique wedding approach left a deep impact on her guests.
It was a poignant moment where conflicting emotions met – sadness and joy intertwined as she married the man she loved.
A Sensory Feast
Kew Gardens, chosen for its sensory-rich environment and accessibility, became the backdrop for this extraordinary wedding.
Lucy ensured that her guests had audio descriptions via QR codes, Braille place settings for the meal, and a menu designed to engage all the senses.
Experiencing Lucy’s World
In Ollie’s words, the moment when everyone blindfolded themselves was profoundly emotional.
It was a brief yet powerful experience that allowed everyone to step into Lucy’s world, sharing in her unique perspective on life.
Lucy’s wedding became a testament to love, unity, and the power of shared experiences, enabling her friends and family to truly “walk in her shoes” on this remarkable
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