Jesy Nelson Breaks Down in Emotional Instagram Video as She Shares Devastating Health Diagnosis of Twin Daughters in Londonb

Eight months after becoming a mum to twin girls, Jesy Nelson has shared news she never imagined having to explain out loud.

In a raw Instagram video posted on Sunday, the former Little Mix singer spoke directly to fans about a diagnosis that has turned her family’s world upside down.

Her daughters, Ocean Jade and Story Monroe, have been diagnosed with spinal muscular atrophy, a rare and serious genetic condition.

The Diagnosis That Changed Everything

Jesy didn’t sugar-coat what the doctors told her.

SMA affects the motor neurons that allow muscles to function, meaning strength is gradually lost across the body.

She explained through tears that the condition impacts everything — arms, legs, breathing, swallowing — and without treatment, it can be life-limiting. Time, she stressed, is absolutely critical.

Doctors at Great Ormond Street Hospital warned that her daughters may never walk or fully regain neck strength, meaning disability is likely.

Still, Jesy made it clear that getting treatment quickly was the priority — and the only option.

How the Signs First Appeared

It was Jesy’s mum who first noticed something didn’t feel quite right.

The twins weren’t moving as much as expected, and feeding soon became a struggle.

At first, health visitors reassured Jesy and her partner Zion that delays weren’t unusual for premature babies.

But as the weeks passed and appointments piled up, the concerns grew harder to ignore.

Eventually, after what Jesy described as “the most gruelling three or four months” of tests and hospital visits, doctors confirmed the diagnosis: SMA Type 1, the most severe form.

Racing Against the Clock

Once the diagnosis was confirmed, everything moved fast.

Jesy explained that treatment had to begin immediately, because early intervention can make a life-changing difference.

Over the past few weeks, both girls have received treatment — something Jesy says quite plainly saved their lives.

Hospital corridors became familiar territory.

She spoke about learning how to manage breathing machines and medical equipment, admitting she often feels more like a nurse than a mum.

“The hospital has become my second home,” she said, adding that no parent expects to learn these skills for their newborns.

Grief, Hope, and a New Reality

Jesy described the last few months as the most heartbreaking period of her life.

There’s grief, she said — not for her children, but for the future she once imagined so clearly.

Still, she refuses to give up on hope.

She believes Ocean and Story can defy expectations with the right support, and she’s holding onto that belief fiercely.

Why She Spoke Out

Sharing such personal pain wasn’t easy, but Jesy said she felt compelled to raise awareness.

She urged parents to trust their instincts and pushed for early testing, including heel-prick screening at birth, which can catch conditions like SMA before symptoms worsen.

She also listed warning signs for babies, such as floppiness, rapid breathing, and a bell-shaped tummy.

A Tough Start From Day One

The twins were born at just 31 weeks on May 15, 2025, after Jesy developed twin-to-twin transfusion syndrome during pregnancy.

Much of her pregnancy was spent in hospital, and after birth, Ocean and Story needed care in a neonatal intensive care unit.

Jesy has previously spoken about how overwhelming NICU life was — the wires, tubes, and constant monitoring making it impossible to simply scoop up and comfort her babies.

When the twins were finally reunited after birth, she called it a moment she could never properly put into words.

Love Under Pressure

During the pregnancy, Jesy also had to undergo an emergency procedure and was advised to remain in hospital until at least 32 weeks.

Throughout that time, partner Zion stayed by her side.

He later shared that the experience deepened their bond, saying hardship revealed just how strong their relationship really was.

They even tried to make the hospital room feel like home, pushing beds together and settling in so much that nurses joked it looked “homely.”

Looking Ahead

Jesy ended her message with purpose rather than despair.

This wasn’t just an update — it was a call for awareness, early diagnosis, and compassion.

Her daughters’ story is still being written, and while the road ahead is uncertain, she’s determined to walk it with honesty, courage, and hope.b

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