After discovering a mass on his brain, he underwent chemotherapy for eight years. In 2020, he required a shunt to draw fluid away from his brain, and in 2021 he lost vision in his right eye.
While on a break at Center Parcs in January 2021, Edward’s family received a call from the hospital informing them that he needed to undergo a bone marrow biopsy.
The procedure was performed on January 18, and the next day the family was told that Edward had acute myeloid leukaemia.
Edward was hospitalised and remained there until he passed away on February 22.
His family described him as a little nutter but also very sweet, taking time to make decisions about what to spend his pocket money on and being generous to others.
Edward loved arts, crafts, and going on night drives. His family now wants to give him the best send-off possible and has set up a GoFundMe page to help with fundraising.